Flashes of Magic

Posted On Jun 2, 2020 By admin With Comments Off

When your lad has a progressive illnes that will take away his mobility little by little and will dramatically lessen “peoples lives”, one of the letters you listen over and over again from everyone around you is “make memories while you can”.

And that’s all very well – in fact it’s a very good point. But it actually places vast adversity on a family to reach life as excellent as it can possibly be, to start every day like an Instagram picture, to visit everything and do everything RIGHT NOW just in case. And that’s alongside trying very difficult not to think about the “just in case” that’s doing you do it.

So when COVID-1 9 forced into lockdown, my first response was to feel that we are being stripped of the opportunities we have to constitute rememberings with our son while we can, that while everything may very well be “back to normal” in a few months’ time , good-for-nothing can oust the time we will lose, all the plans we had. And although clearly that’s true for everyone, the feeling is undoubtably more urgent when we know that Duchenne will relentlessly continue on its path even as the world stops.

These last-place few weeks ought to have challenging.

Two young children, one of whom has a complex medical plight as well as Autism, Daddy trying to work in our bedroom with constant interruptions. Sebastian has full meter approval at academy and multiple professionals involved in his charge, yet unexpectedly I am trying to provide for all of his needs while also parenting him and two brothers.

There are many people in the same boat and even as I write this, I am painfully aware that we are able to stay safely at home through this – we are definitely the lucky ones.

In amongst the co-existing chaos and boredom, there are still flashes of sorcery. There is laughter, there is joy and there are amazing minutes that will be imprinted on my remembering forever. I hope they will stay with my children too.

Perhaps we don’t need to work so hard to create those memories.

Perhaps we don’t need to spend huge amounts of money, to be established by a picture-perfect scenario, a once in a lifetime opportunity. Perhaps we don’t need to feel failure when those dates that we have spent so much time planning don’t live up to what we wanted them to, just as our Pinterest crafts and colour coded homeschool syllabus don’t last-place beyond 9 am.

Because we are the same 4 beings, the same family with the same mistakes, the same annoyances and the same challenges. That’s true in Disneyland just as it is in our back plot. But crucially, the same magic will be there too. And that’s what reminiscences are really made of.

The post Flashes of Magic showed first on Firefly Blog.

Arc the Lad